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jenni_b
#1 Posted : Thursday, July 01, 2010 9:39:45 AM Quote
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Hi all

I have been told the addisons disease is not primary addisons, it is secondary addisons. This is good news in effect because it means although the endocrinologist thinks the dodgey immune system has chewed some of the adrenal glands they have been knackered mainly by the steroids. Excess steroid.

All the precautions and safety things to do with primary addisons still apply but there is hope that the adrenal glands can recover. He warned that they do not always recover and mine might be too damaged but in the meantime I can start to reduce my 100mg of fludrocortisone to 50mg then off within 4 wks. I can start tackling the hydrocortisone morning dose 20mg to 15mg over time. I still need to keep the afternoon dose of 10mg the same. Bearing in mind that is 130mg of steroid a day, he says I have done well to maintain my weight. (which made me feel a bit better about the lardy gut bucket appearance)

I make zero testosterone and that is all to do with the adrenal glands being shrivvelled to about 10th of their proper size.

I am making an appt to see the GP about this stupid leg and ridgidity of the leg muscles as endocrinology say it is nothing to do with them. I want a proper scan done at least.

Anyway- over all I am pleased to say that this looks like good news.

I get my blood results today- and 2nd loaded dose of the cimzia, so appreciate your kind thoughts and prayers.

Love to everyone

Jenni xx
how to be a velvet bulldoser
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Rose-B
#2 Posted : Thursday, July 01, 2010 10:41:44 AM Quote
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So pleased for you.

Take care

Rose
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dorat
#3 Posted : Thursday, July 01, 2010 11:25:23 AM Quote
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That's good news about the adrenals Jenni, everything crossed for you that they are able to recover.
Good luck for today, I'll be thinking of you.

Love and hugs, Doreen xx
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lizziemouse
#4 Posted : Thursday, July 01, 2010 12:49:01 PM Quote
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This sounds good news Jenni. Hope blood results are good too, lots of love from Liz xxxxx
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Kathleen_C
#5 Posted : Thursday, July 01, 2010 4:20:54 PM Quote
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Hurrah, some good news Jenni! I hope the adrenal glands will recover, and good luck with the Cimzia today.

Take care,

Kathleen x
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lyn2
#6 Posted : Thursday, July 01, 2010 4:25:51 PM Quote
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Glad to hear the Cinzia is working well for you, Jenni. I hope they can sort the Addisons and your leg problem.

Love Lyn
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BarbieGirl
#7 Posted : Thursday, July 01, 2010 8:04:09 PM Quote
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Glad the Addison's is secondary, it must make a big difference to know that. The cimzia seems to be working well for you (replied on other post) we are always thinking of you, take care xSmile
BARBARA
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jeanb
#8 Posted : Friday, July 02, 2010 10:47:21 AM Quote
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Another glimmer of hope for you Jenni. It all has to be good!
xxxxxxxxxxxxxxxxxxxx
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Calmwater22
#9 Posted : Friday, July 02, 2010 1:38:20 PM Quote
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This all sounds so postive so pleased for you to have good news
especially addisons not primary.
good idea see gp re insist on a scan asap.
hope pray steriod reduction doesnt casue any issues,as your doing well with cimiza thtas great.

wel done you re weight with that amount steriods not at all easy,your such an inspiration tower of strength and support.
gentle hugs.
lv melly
cuddly cats make my world seem so much more fun
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Lorna-A
#10 Posted : Friday, July 02, 2010 4:43:42 PM Quote
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Hi Jenni,

So pleased your new meds are working and you have some good results. Hope it keeps up and your leg shows improvement too. Love to all. Lorna x Smile
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prioryc
#11 Posted : Saturday, July 03, 2010 10:43:14 PM Quote
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All sounding better Jenni. just need that leg problem solved!

Eleanor x
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